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	Deadly Delays: One disease, two babies (Milwaukee Journal Sentinel) View
	Coping With a Fatal Disease: Dillon Papier's Story (The Wall Street Journal) View
	Struck Twice By a Fatal Disease, Family Fights On (The Wall Street Journal) View
	Texas Families Urge Lawmakers To Move Faster To Screen Newborns For Deadly Genetic Disease (CBS TEXAS) View
	Deadly Delays: Delayed results, a life at risk (Milwaukee Journal Sentinel) View
	Metabolic disorder/Two children with rare disease in one family. Two different deaths. (Courageous Parents Network) View
	Rock Hill baby battles rare genetic condition (The Herald) View
	Lily's story - Australia's deadliest childhood disease (full version) (Heart Foundation) View
	Nevada baby diagnosed with rare genetic disorder (News 3 Las Vegas) View
	Battling Batten: 2-year-old girl near Brookings diagnosed with rare u0026 fatal genetic disease (KELOLAND News) View