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	Lisa Schill : Becoming an Empowered Advocate (EveryLife Foundation for Rare Diseases) View
	Lisa Schill : Building a Relationship with Members of Congress (EveryLife Foundation for Rare Diseases) View
	Cures 2.0: Lisa Schill (EveryLife Foundation for Rare Diseases) View
	patient stories (Colin Stone) View
	Leslie Rogers CFC Medical Registry Presentation 2017 CFC International Conference (Cardio Facio Cutaneous Syndrome International) View
	Nick Manetto : Importance of Congressional Committees (EveryLife Foundation for Rare Diseases) View
	🍎Djamila u0026 Stéphane - Move forward without guilt - CFC syndrom (ep3) - France - FR2020 (EwenLife Rare Diseases) View
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