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	Rare Disease Advocacy (CheckRare) View
	NORD: 30 Years of Advocacy for the Rare Disease Community (National Organization for Rare Disorders (NORD)) View
	Rare Disease Advocacy and Research at the University of Notre Dame (Notre Dame Science) View
	The Varying Perspectives of the Rare Disease Patient Advocacy Community on RTT (ASGCT) View
	Advocacy Group Brings Attention To Rare Diseases And Disorders (KCAL News) View
	Patients Matter: How Rare Disease Patients Can Move Scientific Discovery Forward (U.S. Food and Drug Administration) View
	Advocacy in rare disease: Surveying the landscape (TEASER - Free Webinar) (Fondation Ipsen) View
	Advocacy for Rare Disease Week and helping Americans navigate the healthcare system (WUSA9) View
	#21 - Patti Demuri, Rare Disease Patient Advocate (Sam Talks Telehealth) View
	Advocacy in rare disease: Crafting the public narrative - Webinar (teaser) (Fondation Ipsen) View