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	The EveryLife Foundation (EveryLife Foundation for Rare Diseases) View
	New Report Estimates the Number of Rare Diseases Is More Than 10,000 (CheckRare) View
	Inflation Reduction Act (EveryLife Foundation for Rare Diseases) View
	Sanfilippo u0026 accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day u0026 more (Cure Sanfilippo Foundation) View
	New Study Shows the Excess Costs Associated with Delayed Diagnosis (CheckRare) View
	Jackie Weinrich (EveryLife Foundation for Rare Diseases) View
	Accelerating cell and gene therapies for rare diseases: ARM Studios interview with Julia Jenkins (Alliance for Regenerative Medicine) View
	Emil Kakkis and Max Schill (ResearchAmerica) View
	Rare Disease Day (WTNH News8) View
	Julia Jenkins, EveryLife Foundation for Rare Diseases: Patient’s shape science-driven public policy (WCG) View